Bridget Zuin preparing for 65 Roses Day, a day to raise fund to help find a cure for Cystic Fibrosis.Picture: PETER PICKERINGARARAT – Tin shakers will be out this Friday – also known as 65 Roses Day – to raise funds for Cystic Fibrosis, a cruel disease which affects infants and young people.
Cystic Fibrosis is a disease which has hit close to home for Ararat business woman Bridget Zuin; her young niece has the disease.
Ms Zuin has organised a monster raffle, merchandise sale and importantly tin shakes at the intersections of High and Vincent and Vincent and Barkly streets on Friday, from 8am to 6pm, so if you’re driving around town on Friday, make sure you drop some coins into the tins or buy a raffle ticket or some merchandise, available out the front of the Bendigo Bank between 9am and 5pm.
The raffle features some great prizes, including first prize of Vera May luggage, donated by Zulu De-Zines, valued at $200 and second prize a one hour massage supplied by Bec Mirtschin.
Raffle tickets and 65 Roses Day merchandise, including pens, wrist bands and lapel pins, will also be available from Zulu De-Zines.
All money raised will go directly to Cystic Fibrosis Victoria to help find a cure for the disease. This organisation was founded in 1974 by parents of children with CF, and provides advocacy, support and information services to people living with CF and their families.
CF is ‘autosomal recessive’ meaning that it occurs equally in males and females, the CF gene must be inherited from both parents and it can ‘skip’ generations.
In Australia, one in 2500 babies are born with CF and on average one in 25 people carry the CF gene, most of whom are unaware that they are carriers. Because carriers of CF are unaffected (and therefore show no symptoms) it is hard for them to appreciate that CF may be a real risk.
Since 1986 all newborns in Victoria have been subject to a heel prick test. This test is used to screen for a number of conditions, one of which is an indicator for CF. Diagnosis may also result after the baby is born with obvious CF symptoms such as bowel blockage or failure to ‘thrive’. The heel prick test does not detect everyone and the definitive test for CF continues to be the Sweat Test, as high levels of salt in perspiration is extremely common among those with CF.
Management and treatment of CF is lifelong, ongoing and relentless.
Treatment generally involves intensive daily physiotherapy to clear the lungs, enzyme replacement capsules with food to aid digestion, antibiotic treatment to treat lung infections, aerosol mist inhalations via a nebuliser to help open the airways, salt and vitamin supplements, a nutritious diet and exercise.
There is no cure for CF at present. Research is being conducted around the world, with large scale programs in both the USA and UK. In Australia, Cystic Fibrosis Victoria works through the Australian Cystic Fibrosis Research Trust, which supports more than $500,000 of research a year across Australia.
The raffle will be drawn at 7pm on Friday at the Shire Hall Hotel, with all welcome to attend.
This story Administrator ready to work first appeared on Nanjing Night Net.